General
Blog Resource copy of Blogs from old site Clinical Trials Participating in clinical studies is critical to understanding PSC and to developing effective treatments. The opportunities for PSC patients to participate in studies has increased significantly in the last decade and hopefully will continue to increase as we make progress towards improving the lives of PSC patients This is the place to support and share with others in your trial your experience. Announcements of Clinical Trials and enrollment Information MUST be approved by Ben’s Friends Medical Officers and be listed in the NIH at https://www.clinicaltrials.gov/ Articles and Research Articles may not be peer reviewed or authoritative. Please do not use them as a basis for self-treating Photos Member Photos and videos What's New With You? Give us an update. How are you doing?
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Become a Champion for Our Rare Disease Community
Thank you for being an essential part of our Ben’s Friends community. Today, I want to invite you to take your support a step further by becoming a fundraiser for our “Friends Helping Friends” campaign. What does it mea… |
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1 | 19 | November 19, 2024 |
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Join Us in Strengthening Our Rare Disease Community
I hope this message finds you well. As a valued member of our Ben’s Friends community, I’m reaching out to share an important initiative that directly impacts the support we provide to individuals like you who are affect… |
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1 | 33 | November 15, 2024 |
| About the General category |
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5 | 3248 | July 1, 2022 |
| Alcohol in moderation |
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5 | 115 | November 9, 2024 |
| A good message |
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0 | 48 | October 31, 2024 |
| My Story - |
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7 | 101 | October 31, 2024 |
| Back to Normal- Invisible dysplasia-2nd opinions |
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3 | 73 | October 7, 2024 |
| 9th Transplant Anniversary |
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1 | 90 | July 30, 2024 |
| We Need Your Financial Support |
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3 | 67 | July 16, 2024 |
| Anyone Have Two Transplants? |
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4 | 132 | July 10, 2024 |
| Low hemocrit and hemoglobin |
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7 | 183 | July 4, 2024 |
| Now diagnosed with high grade non-conventional dysplasia |
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6 | 221 | May 25, 2024 |
| Cholangitis again |
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8 | 398 | May 20, 2024 |
| Low grade dysplasia in recent colonoscopy |
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31 | 1243 | May 3, 2024 |
| Oral vancomycin treatment on adults? |
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111 | 11862 | May 2, 2024 |
| Not yet determined to be dysplasia - Next steps |
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12 | 278 | April 8, 2024 |
| How best to request Vanco for adult |
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11 | 506 | March 29, 2024 |
| A Liver Transplant Love Story |
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3 | 222 | February 15, 2024 |
| Coffee and PSC |
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37 | 8599 | February 14, 2024 |
| Your Stories - How Has “Living With PSC” Benefited You? |
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4 | 333 | January 30, 2024 |
| Merry Christmas |
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7 | 269 | January 1, 2024 |
| Revisiting |
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11 | 360 | December 25, 2023 |
| Helpful Information about Primary Sclerosing Cholangitis |
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3 | 482 | December 21, 2023 |
| Transplant coming up |
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14 | 401 | December 10, 2023 |
| Pregnancy and Urso? |
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4 | 269 | November 5, 2023 |
| Ben's Friends Fundraising |
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0 | 239 | October 21, 2023 |
| Sepsis-again |
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11 | 366 | September 16, 2023 |
| PSC Patient conference and Fundraising auction (Canada) |
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2 | 192 | September 8, 2023 |
| Hepatologist on Long Island, NY |
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3 | 493 | July 29, 2023 |
| My Son's Vancomycin Success Story |
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14 | 684 | July 23, 2023 |