Patient Registry - Please Join Today!

To those of you who haven't heard, or are newly diagnosed, please join the patient registry. We need each and every PSC patient to participate to help the researchers find a cure. The PSC Partners Patient Registry was established in collaboration with the National Institutes of Health (NIH) The Office of Rare Diseases Research.

You can find out more here including information about how your identity and private information will be de-identified before releasing anything to researchers.

It doesn't take long - and there are very kind people who will help you if you run into any problems.

Please take the time to help! For us and for yourself!