I got diagnosed with PSC about 18 months ago. I have had Crohn's disease for a bit over two years. I sometimes get dizzy/light headed. I first got dizzy/light headed (feeling like I am on a boat or something!!) about a year ago. It lasted for two weeks, my doctor said it must be a virus. Now I have it again. This may be totally unrelated to PSC but I thought I would throw it out there to see if anyone else has had this symptom? My doctor told me I should probably go and get an MRI if the dizziness comes back (which it has :/) Any thoughts? I am on Ursofalk for PSC and Pentasa (Mesalazine) for the Crohn's.
Thankyou so much for replying to my message. It was so wonderful to see that I had a reply as it has been troubling me a little bit. I think I would say that it is dizziness. It is like a kind of spaced out feeling! I don't have any nausea. I don't consume alcohol due to the PSC. I am definitely going to go back to the doctor and get a referral for an MRI as like you say, it isn't harmful and it can rule any serious problems out. I have just started a very stressful new job so I think you may be right on the money there!
Dont know how scientific this answer is but when I brought up those symptoms which were usually during a flare up or cholangitis attack, my doc said it was provably being caused by the toxins in my body not being processed through the liver. Maybe something to bring up?
I would definitely talk with your doc about the dizziness and the spaced out feelings. Maybe ask for an ammonia test to check on HE?
With fatigue, I had to learn to pace myself. Even if it meant sleeping for an hour or two when I got home from work. There were many weekends where I had three naps both days.