Hi everybody just wanted to say hello and thank you all for this community and especially moderator-s who is doing their best. I am father of 16 teen girl diagnosed with UC from age 1 and PSC from age 8.
Sorry for english we are from EU. Kind regards to all!
Matthew,
Thank you for your kind words. We are also rare disease patients with a passion to give back to others what we have been through and how we are overcoming amidst these difficult circumstances.
I’m glad that Ben’s Friends has been a help to your dear daughter. Please feel free to contact us with any questions and we will do our best to help.
Mark Wilson
PSC 2011 / Liver Transplant 2015
Hi Mathew,
The community here is great, people who have gone through a variety of situations. Must be very hard as a parent, looking for the best for their daughter.
Steve
Mathew, thanks for joining.
Jeff
Hi Mark,
I have just jpoined 2 weeks ago almost. My son igot diagnosed with UC aged 14 then PSC aged 15. I tried to post today but one of my health issues makes it hard for me to navigate some sites. I couldnt work out how to post again, even after reading it all and watching video. I hope it’s okay to just reply to posts instead.
Glad to have found this forum.