I have had doctors say to me that there is no correlation between food and Primary Sclerosing Cholangitis and Ulcerative Colitis. I believed differently because I noticed earlier on when my daughter drank milk her stools became more bloody. I therefore removed milk from her diet. Then I was referred to a Naturopath who told me to take her off all dairy and gluten. I did research and spoke to people who suggested the same and so with reluctance I tried it. She seemed to do much better, but was still not doing as well as I thought she should be. The Naturopath told me to take her off all processed foods too. I felt that was too harsh as she was only a child and it was hard enough that she has to be deprived of so much and suffer so much. Besides her doctors did not believe that there was any substance to what the Naturopath was saying. I continued to give her treats like pasta (gluten free and dairy free), biscuits, cakes etc.
Anyway jumping ahead. On 2nd July 2014 my daughter had bloodtests that showed her ALT: 780, AST: 1205 and her GGT 269. I was really worried. I looked through all Princess D's bloodtests and realised it had NEVER been that high before. I got really scared and this time when the Naturopath told me to cut out processed foods, I did. He told me to start her back on the smoothies. I did. Every morning we BOTH had smoothies. I bought organic food and was more strict with her eating habits. I did feel for her, but Mummy ate whatever she ate so......
Yesterday her blood tests were: ALT: 55 AST 70 and GGT 113.
Maybe I should have listened to the Naturopath from Day One. He kept saying Paleo Diet.
Half a tumbler of spinach with a few leaves of kale or half a tumbler of kale
1 to 1 1/2 tablespoons of chia seeds
1 scoop of Plantfusion Protein Powder
5 to 6 halves of walnuts
Fruit (usually strawberries, blueberries etc)
2 tablespoons Almond butter with cinnamon (optional)
She also has Genestra HMF Probiotics, Nutrasea, Sisu liquid calcium.
The Naturopath also started her on Genuine Health-Whole Body about two to three weeks ago. I haven't been diligent with that though. She should be taking that every day.
She has lots of fruits. I do give her the odd treat, but I am strict with the ingredients.
I just wanted to share because I know how it is when you are dealing with these challenges and feel so helpless.
I apologise for the length of this, but will be happy if I help one person.