If so, what do you experience, what tests have you had, and/or what have you been diagnosed with?
I’ve been coughing, hoarse and with congested lungs for about eight months now. A lung x-ray six months ago, notoriously imprecise of course, showed nothing. Thus far my doctors have been of little help. (“Do have have mold in your house?” "It’s reflux… PND… etcetera.)
I am 65, was diagnosed with PSC in 1991, last surgical wedge biopsy at stage 3 ten years ago, initially improved on Vancomycin but many of my symptoms have returned, liver enzymes are still lower than before I began Vanco, although of course it’s impossible to know without a liver biopsy.
I’m sort of freaking out as I was a two pack a day smoker for about twenty-five years, although I quit almost thirty years ago.
Yes, I’ve been diagnosed with pulmonary fibrosis after a full chest MRI. I’ve never smoked and was always very athletic before contracting PSC in 1997. I’ve had a total colectomy and then a liver transplant in 2004. The fibrosis flares up once in a while but disappears after a couple of days.
I had something called hepatopulmonary syndrome, which is a reduction in oxygen transfer from changes to blood vessels in the lungs, resulting in low oxygen saturation (like as low as 70%. It’s associated with liver disease and resolves with transplant. Doesn’t really sound like what you are talking about. Are you short of breath?