In participating in a recent course on liver transplantation, they had a video interview of a patient with PSC who had received a liver transplant. I thought you may benefit from watching the video also. They do have sub-titles that you can turn on if you have difficulty understanding his British accent.
Here's the link - https://www.futurelearn.com/courses/liver-transplant/1/steps/64848
Mark Wilson, Moderator
PSC 2011 / Liver Transplant 7-2015