Thank you Paul. Since that post our daughter Alana has had more blood tests and her bilirubin is decreasing. Yes, I asked that question about her stage of disease and our hepatologist believes she is further advanced in the disease. Another blood test tomorrow to see where she is at two weeks later.
I agree with all you said. Thank you for your response and I’m soooo glad you are five years post transplant and doing well!! Encouraging!!
Mollie