The itching is constant but not as regular as it were before, but I still had severe panic attacks of itching on my under feets and palms, sometimes I had to hold ice in my hands to relieve from itching as my hands get too hot. I don’t know about MELD score and neither my doctor told me about this. But I did found this calculator, http://reference.medscape.com/calculator/meld-score-end-stage-liver-disease and run the numbers, Creatinine, 0.79 mg%, Billrubin Total, 3.93 mg/dl and PT/INR 13.1 sec. The resulted number is 38. The liver function has never came back to normal since the diagnosis. It is always elevated, especially SGPT* and Gamma GT*.
In my country, India the disease is very rare, not many people know about it, neither some good research articles are published here. Civil hospital doctor’s are educated about the disease but the only prominent solution they offer is Liver Transplantation, which is a costly as well as a very risking plan. I met some private doctors they do help to relieve the symptoms with constant ERCP’s, the only solution, I have been told could work in my case, if I don’t want to get a liver transplant. Either way liver damage is for sure coming in my future years.
I don’t know how many years I have, but if this is the way it should go, then why not learn more and educate myself, to lead a better life till the time I could.
The most recent liver tests and ERCP were conducted in January 2017, I was also found negative on P-ANCA* and C-ANCA*. This is the time when my doctor also performed a colonoscopy and he said that I might also have colitis or IBD.
What would you advise I should eat to control my diet as well as keep in check of my weight loss?
I can’t take on fatty and greasy foods, so I avoid milk, butter, creams, cakes, etc. I do take some ice cream but in very small quantities. I don’t do red meats at all, avoid eggs, when I can. But do like chicken. And, almost all veggies and fruits. Especially the ones which are rich in fibre content as it helps to relieve the stomach stress. What else? Please help?