Adult female with Down Syndrome and PSC

About ten days ago we noticed a yellowish cast to our daughters face and whites of eyes. She also has been scratching for four months to which her pediatrician attributed to dry skin. Needless to say one thing led to another and we ended up at University Hospital in Cleveland, Ohio. We are so devastated at this news but find this site so hopeful that she will be able to get help and that this is a long process and not immediate. Im not very educated about PSC but am reading all I can. Many different opinions on her situation has upset me. Her bilirubin going in was high and continued to climb after the procedure

Hi Mollie,
I was just reviewing some old posts here on the forum and noticed one here no one ever responded to from 2017. I’m glad you didn’t give up and am thankful Alana is doing well the last time I heard from you. Be assured of our continued prayers for her.