Had another cholangitis infection last week, putting me back at Piedmont Hospital from Thursday through Sunday. Luckily, I think I got there early enough that my bloodwork had not gone haywire. My liver levels were pretty good.
What was not good is that the meds have taken their toll on my kidneys., as my GFR hit 26, when the lowest level of normal is 40. So I meet with a nephrologist on March 23rd. I have accepted living with a transplant, but never thought I would have to deal with kidney problems.
Like Rosanna Rosanna Dana said, “If it’s not one thing, it’s another.”
For those of you post-tx, have you ever dealt with any kidney issues?
So very sorry to hear this. I’m very lucky, my numbers have remained pretty much the same for 3 years. Hoping they stay that way. Consistently twice what they should be, but I’m told not too bad. Pat
Yes, I have. Kidney issues were the farthest from my thinking when I learned last year I have Stage 3b kidney disease! The nephrologist said it had a lot to do with my age (80 on 4/8) and part to do with all the meds I’ve taken. They don’t tell you the down sides to medicine until you manifest the problems. I was on 23 Rx’s after diagnosis of PSC, ulcerative colitis and c.diff infections. Prior to that, my teeth were normal. After years on meds, my teeth decayed from the inside out! My dentist attributed it to the meds I took pre-transplant. I now have spent $40K+ on jaw bone reconstruction by a maxillofacial surgeon and dental implants. Jeff, you are tough enough to get through this challenge, too.