An update on me!
Good news at my appointment with my specialist in March......comparing my MRI scans of my liver over the last few years show no change in my liver. Sods laws then 2 weeks later I have my first attack since I was diagnosed in 2007. Should have missed that appointment :)
I was in alot of pain for about 45 mins, but then back to normal relatively quickly. My Gamma GTs shot up to around 400 but have since come down to around 120. With me it seems to be only my gamma GTs that are high, the rest are still low. Has anyone else experienced this?
Speaking to my specialist a couple of days ago they gave me the option of starting to take medication to see if I see any benefit to my PSC, so they have put me on Ursofalk, or Ursodeoxycholic acid.
Has anyone tried this before or have any experiamce with it? I havent seen anyone mention Ursofalk in any of the discussions (might not have seen it so sorry if its been spoken about before) its mostly been about vancomycin.
Im not sure if Ursofalk is a subsitute for Vancomycin? I will check with my specialist when i see them next, thought i would check-in here with you all first!