I saw my post transplant hepatologist yesterday for my annual visit. I had my transplant 3 years ago. He told me that PSC patients that have been transplanted have a higher than average risk of organ rejection. Has anyone else been told that?
i have read that many times. unfortunately people forget that the underlying issue is the immune system attacking the liver not a problem with the liver itself. there may be a new liver but the autoimmune issue likely persists. i would look into a diet that reduces the risk of autoimmune reponse.
I have a meeting with the transplant surgeon on the 29th April…could this be one of the questions I should ask??
Hello Paul,
I was just reading your post from back in March. I'm glad to know you are doing fine 3 years post transplant. I had my transplant in July of this year and am doing well. My hepatologist has told me that recurrence is possible but the recurrence rate is low. One thing he did do so that recurrence does not occur is they are keeping me on a maintenance dose of 5 mg of Prednisone for the rest of my life due to the original PSC. You might ask your hepatologist about that and see what he says. Of course Prednisone gives me an appetite which has led to quite a bit of weight gain 4-1/2 months now since transplant. I wish you and yours a very Merry Christmas.
Mark
PSC 2011 / Liver Transplant 7-2015
Thanks for the tip about Prednisone, Mark. I will take it up with my hepatologist. I am glad to hear you are recovering well. Patience with yourself. It can seem slow. It was 5 or 6 months before I began to feel good. I had a live donor liver which is just 2/3rds of a full liver in size. While it is growing for six months, I was very fatigued. Cadaver liver transplants come on-line fully operational right away. That’s why my healing was slower.
Prednisone does cause appetite arousal which makes you feel like eating. It’s hard to resist that urge, especially at night. Good luck with that!
Merry Christmas and Happy New Year! This is certainly a year to rejoice!
Paul