Possible psc diagnosis and freaking out :(

General
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Well hey… liked reading that!
One step at a time doll - you’ll get there and you are right. You’ve a Lot of years ahead of you and who knows what’s to come so we best keep getting back on this horse of life and ride into that Sunset to come.

I had some bad IBS in 2015 and 2016 so I do understand. I also very well understand being overwhelmed and not just by possible PSC diagnosis. As Mark mentioned it sounds like early stage PSC possibly for you based on blood work. Focus on that as even if positive per MRCP, early stage is good and our options for being a part of trials or otherwise expands. I’m working on with Mayo MN now. Not sure I’ll make it as my liver enzymes keep improving. BUT going to get my foot in that door.

Keep me/us posted lady, I meant it, here for you to read, respond, listen.
You too have a wonderful day sweetie - sun shining here with some big puffy clouds. Out to yard now and then that bbq tonight. A good day. And even better now that I’ve connected with you!

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Yea got the blood work done but nothing confirmed until MRCP so still hoping… you are a gem!! I hope you have a beautiful day I appreciate you and everyone else on here :slight_smile: and glad to hear your enzymes are improving… xoxo

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I will say this - my hepatologist never mentioned PSC until after the MRCP even with LFT’s rather crazy and high on other markers. They were normal in May 2017. Wrong in October 2017.
I’m sorry you are going through this prior to a more firm diagnosis, but I feel a lighter you right now just since you first posted, regardless of “what’s next”. Ride it!
:slight_smile:

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