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General
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Good morning everyone,

I was just thinking how nice it would be if all of us posted a photo of ourselves.

This group is about all of us being in the same fight, all of us struggling at different times. Having a photo, I believe, simply personalizes things a wee bit more.

If you want and if you can, I would love to see more photos of everyone.

Thanks so much,

Stephen

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Very good idea Stephen, let me comb my hair first....DaveCJ

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Thanks Stephen, almost 15 yrs. old and still running great !!! I'm a lot older than that and not running quite as great, but I'm hanging in there...lol...DaveCJ

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Hi Stephen, Nice to see your post. I was diagnosed with PSC this past April. Got the news literally the day I was supposed to leave for Thailand. My disease was discovered through blood work which showed significant increase in my enzymes. etc.... A biopsy and MRI confirmed this too. I am though at an early stage, minor symptoms at this point, but the fatigue is rough at times. Nice to be part of this group!!!

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Stephen Cox (formerly Big Steel) said:

Hi Elsie,

It's good to hear from you.

Your story is interesting. Getting your diagnosis the day you were heading to Thailand must have been a shock.

It's good to hear that your PSC is stable apart from the fatigue. It's tough to deal with fatigue, you can take a 2 hour nap wake up and still feel exhausted. I have found this tough to deal with.

We are glad you are part of this group. Keep in touch. We are all in this fight together.

Stephen
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HI Stephen, Yes it was quite a shock, but maybe good in a way as I needed to keep busy and I did not have time to think about it much. I actually the final diagnosis while I was In Thailand, when the MRI results were available on my hospitals web site. My Dr said I am at a stage one. I was supposed to go see her in May, but something just does not seem right lately and I will be going March 12. One thing I have noticed is that I am having a lot of trouble with my blood pressure lately. A bit more abdominal discomfort, but I am trying to remain positive. I am glad to be a part of this group, with others who are going through this. Do u have problems with your blood pressure too? Do you follow a certain diet that helps you? Thanks for your reply and I look forward to hearing from you!!!

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Thank you so much for your response and very helpful suggestions. I do tend at times to go overboard on the salt. I will work on that. I do not drink at all, so that is good. When I first found out about the PSC, My Dr said to make sure that I eat well, I am working hard on that. I am looking forward to spring where I will be outside a lot and getting more fresh air and exercise. I also have MS and am on meds for that, which I believe could be contributing to the high bp. I eat very little fried and fatty foods for more, I have found that my stomach just cannot handle those foods anymore. Thanks so much for your support I am so grateful for it, this is a scary disease and nice to know I am not alone. I go to Dartmouth on the 12th for an MRI bloodwork to see where things stand. Please feel free to let me know how you are doing and if u ever need to chat. I am early on in the disease, but I am a caring person and believe that it helps so much if we know someone is there for us.Have a wonderful day and I look forward to hearing from you