New to this forum. I’m 76 years old, diagnosed with PSC about 10 years ago but it was probably lurking for years prior to dx. I live in the PNW and looking to share resources and support from others, especially in my area. Thanks for the add.
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Indy_Ed,
Thanks for joining. We appreciate your wanting to share resources, thoughts, recommendations… That is what helps make this forum such a good one for those with psc.
Jeff
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Welcome! I’m 67 and was diagnosed less than a year ago. This group is a wonderful resource.
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Thanks! I was about 66 when diagnosed, experiencing a lot of the symptoms-nausea, itching, jaundice etc for about the next 2 years. I had my gallbladder removed a month or so after dx, my symptoms were probably complicated by gallbladder issues. Things were pretty good up until the past year or so, now those symptoms seem to be coming back, I just had a major “flareup” a couple of weeks ago. I never had any UC or IBD issues so I’m hoping the PSC will progress slowly. Right now I’m on Levaquin for a week, then retest LFs to see if things have improved.
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Ed,
Thanks for sharing your story. I hope things will settle down for you soon. Be careful about taking Levaquin, especially in regards to the Achilles Tendon. I was on it a few years ago for a bad bronchial infection and pulled my tendon really bad. This is a side effect of this medication, so I just wanted to share that with you for caution. Thanks for posting today.
Mark
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Yes, I have been very cautious (lazy). I remember the same issues with Cipro when I was taking it for another infection, many years ago. I hope the Levaquin does the job, I may ask my doc if she thinks I should keep a dose on hand in case I have another flareup.
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