Hi, I’m Clipper and I am suffering with PSC. In June of 2013, I tasted something very bad on my food, but continued to swallow it, resulting in an instant attack of nausea. I was sick to my stomach that night, and then awoke every morning for the next two weeks feeling nauseous; oddly I only had it in the mornings. After two weeks I saw my doctor and explained what had happened; he pretty much ignored it, and called it unexplained nausea.
Over the next couple of years I saw different doctors who ran various tests, which always came back normal. I was sure I ingested bacteria but they said the stomach acid would have killed it. I was routinely given anti-nausea medicine, which did not help at all. I felt great other than the morning nausea, and I was back to school earning another degree which was pretty stressful because I’m no spring chicken.
I’ve always had an excellent digestive system, I use to say I had an iron stomach, and I’ve always had a healthy bowel system and still do I think. I was however drinking a lot of carbonated water, which I have since learned dehydrates the body if not drinking regular water as well. The liver requires hydration!
In 2015 I started drinking strong lemonade with the slightest bit of sugar, which eliminated the nausea for two months, but it came back for some reason. I kept drinking the lemon water but it no longer helped.
I grew tired if the doctors, who didn’t have a clue what was wrong with me and contacted a doctor who had been an MD for 17 years but switched to Homeopathy. She thought I had ingested bacteria that was living in my bowel. She put me on a no food diet to starve the bacteria. Three times a day I had to drink the most discusting concoction of vitamins; but I was not getting enough, only 700 calories a day, so my endocrine system crashed. I had lost 19 pounds in three weeks, and suddenly had high enzymes in my blood, and low thyroid. After testing they said I had pancreatitis. I went from serious hiker, athlete to nearly a dead stop, in just three weeks.
A month later I went in for another blood test and my liver enzymes were high. More tests were ordered and I was diagnosed with PSC, instead of pancreatitis.
I then found a doctor who found two parasites in my liver, one in my pancreas, one in my left temporal lobe, and one in my lymph node. I also had 8 different bacterias in my liver, and h-pylori in my stomach. I had essential eaten feces 3.5 years before, and the parasites have been eating my bile and chomping away at my bile ducts all this time.
I am free of h-pylori but I continue with a low dose of medicine to keep it from coming back. I’m free of most of the parasites but still have the two in my liver, and lymph node. The bacteria has been eliminated finally.
Paracites feed on hard metals so I have had chelation therapy six times. The tests showed a VERY high amount of lead, cadmium, and gadolinium; and high aluminum. I’m an artist and used lead paint in my early years, and cadmium red throughout my career, so I wasn’t surprised by the results. I was upset about finding the high amount of gadolinium because I had had the MRI 7 months before and there was still a high amount in my system.
That brings my story up to date. I’m having a hard time dealing with this diagnosis. I’ve not been able to gain the weight back that I lost, I only weigh 104 lbs. I take about 35 different medications, all natural, and it costs a fortune. But I become more sick without them.
I don’t know anyone else with this disease, so it’s a bit lonely. I see my hepotologist in two weeks to test my levels; they were coming down 6 months ago, so hopefully they are still going down or at least not risen.
Has anyone else been diagnosed with parasites? And has anyone else developed cracks in the tongue, and do they go away?
I hope this isn’t too boring. I’ve never been good at writing. Thank you for taking the time.
Clipper