A lot of PSC’ers seem to avoid gluten after PSC diagnosis and some of them are diagnosed with celiac disease along with PSC/UC. Are all of you getting tested with blood work+biopsy for celiac disease or doing other tests like fecal anti-gliadin-igA? How much trust should we put on these supplemental tests?
My son tested negative for tTG-IgA via serum tests last year and working with a functional practitioner now (UCSF/Stanford trained family medicine doctor who does functional medicine too), we did few additional tests (urine/fecal) to learn more about his leaky gut. His numbers seem to be high suggesting dietary gluten intolerance. But physician’s/GI’s don’t seem to put that much confidence in these tests as they are not that reliable in screening patients accurately as per https://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/. We did our tests from enterolab. Before these tests, we mostly eliminated gluten from his diet already but not completely.
Fecal Anti-gliadin IgA 148 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 24 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 20 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 20 Units (Normal Range is less than 10 Units)