You have certainly come to the right spot for advice from first hand survivors of this nasty disease.
My past is similar to yours. While in the USMC, I was diagnosed with UC (1988). After battling UC for most of my adult life, I was diagnosed with PSC in 2010.
My PSC stayed pretty much in check with meds until 2020, when after returning from living overseas in Korea, my numbers started jumping (all the bad ones that is).
I was told in September of 2020 that my liver was failing. I had exhausted using stents in the bile duct (no longer helping) and my body, both externally and internally, was deteriorating fairly
In late October 2020, I went on STD from my work after being told I was being placed on the transplant list. My MELD score was hovering around 30 at that point.
November, then December came and my MELD score continued to rise into the lower 30s. By January 2021, I kind of resigned myself to being a goner, yet continued pushing myself along despite the lack of energy, bright Orange color and maddening itching from the bile.
In Late January of 2021, I went in for what I thought was a routine lab draw, only to be called about an hour later while with my son at the grocery store and told to return to the hospital immediately, as they were going to admit me. My Bilirubin at that point was 14.7 and my Alkaline Phosphate around 933 if memory serves me. My MELD score I was told was 42, which surprised me as I had in my mind 40 was end game.
I got really lucky, as after being admitted on a Monday, and making my way to the top of the Midwest transplant list thanks to the MELD score, as thatTuesday night they told me they found a liver and I’d be operated on Wednesday morning.
I will not get into the details of the recovery, not an easy surgery, and you feel like you have been rebooted like a computer, but coming up on 2 years since the transplant and I’m doing amazing. Every lab I have done these days is in the acceptable range. My Bilirubin is 0.8 and Alkaline phosphate 128.
Biggest advice I have is do not get despondent or lose hope. Reach out here if you need someone to talk to, as this is a community who’s members have really been through the same things you are battling. I know Mark and Jeff helped me immensely to understand the transplant process, and gave me hope knowing they had been through this before me.