JTB.
Now what do you think small or large ducts ? Based on her report of ERCP?
Thank you so much 
A patient with PSC/UC who responds to oral vancomycin may not need any other medications for his liver or colon. Symptoms and progression will return if you stop treatment. There are quite a few published papers about the efficacy of this treatment. If you are interested I can provide them to you. Have him stay on vancomycin! My daughter takes 2000mg/day and has for 8 years. She has a normal liver and normal colon.
Cactusgurl
Thank you so much for response back, when I hear 8 years of treatment with Vancomycin gives me the biggest hope for life for my son.
Please if you can send me all of the information on PSC and Vancomycin I would appreciate it !!
Thank you so so happy for you and your daughter.
[https://sea1.discourse-cdn.com/flex019/user_avatar/www.livingwithpsc.org/cactusgirl/45/237_2.png] Cactusgirlhttps://forum.livingwithpsc.org/u/cactusgirl
September 21
I cannot send the papers through this portal β you will have to message me.
The important thing is that your son has a diagnosis; whether small- or large-duct probably has little role in terms of treatment plan. Per the definitions in the ACG and AASLD Clinical Guidelines, it appears that your son has classic large-duct PSC as he was diagnosed via ERCP (though affecting the smaller intrahepatic ducts).
ACG:
βSmall duct PSC makes up Λ5% of the entire spectrum of patients with PSC. The macroscopic bile ducts in small duct PSC are normal; hence, cholangiography [ERCP] will not be revealing. Diagnosis of small duct PSC requires liver biopsy, to demonstrate the characteristic microscopic disease. Interestingly, a number of patients with small duct PSC may later develop classic bile duct changes of large duct disease. The risk of progression from small duct PSC to classic disease is unknown.β
Thank you so much for explaining.
Appreciate it.
Cynthia,
You will need to send your email address using private message. Itβs against our policy in order to protect your privacy. Thanks for your understanding.
Mark
Ok. Sorry. Is that option on your site?
Cynthia
Yes just click on the persons avatar circle and then you can send private message
Mark Wilson, Moderator
Primary Sclerosing Cholangitis (PSC) Support Group
Thanks! Sorry again!
Cynthia
Hi everyone.
Is it common to get pancreatitis and elevated pancreas enzymes together with PSC?
My son had pancreatitis twice and his amylase and lipase are elevate every time with liver enzymes together like they fallow each other?
Thank you so much