Hi Flyingcoho, I’ve been following your thread and just want to speak up briefly now that I see your attention is on Vanco. There is so much good and alternative advise to help people on this site, I respect it all, but I can speak for Vanco from personal experience and I would be remiss if I didn’t throw in some emphasis said by others that it deserves your focus. Note that that it remains “medically unproven” by medical standards (a decade of multiphase, placebo controlled trials, etc. is necessary for on label use), expensive and a bourdon to insurances, and contraversial since it is a controlled antibiotic - these are the explanations why it is rarely mentioned from doctors and they change the subject when brought up (often it is by hosptital policy, risk mitigration to say “not until fully proven”). Current sufferers can’t wait for that proof. You have to sell Vanco to the doctors not the other way around. Be firm on it. In the addition to the medical papers on Vanco for PSC treatment, read every thread on this forum where Vanco is mentioned - there is as much information for you in here than you can get in the published papers - sometimes more helpful advice. So I don’t have to type it again, see this one of mine with links to medical Conference Q A with Ken Cox posted by JTB in which parents of remmissioned kids get up to advocate for approval of the drug. Also a website of parents who are trying to overcome the hurdles to get attention to Vanco as an orpan drug. Go to your Doc well armed.