DB1, I really appreciate your thoughts. I will be reaching out to you separately as well because I want to avoid having my son ever going off Vanco given the great results he has had (his physician has hinted about reducing or eliminating his Vanco at some point). I am working to collect experiences of others in this situation with children on Vanco. It sounds like you have gotten great long-term results.
Happy to report that my son just received recent labs and all of his liver enzymes are now normal! Update on 5 Year Old Son (UC-IBD) and Vanco - #17 by STLBluejay
He is also doing wonderful physically, having grown substantially over last year, nearly catching up with his twin brother. He also is very active in sports. Thanks so much!