Kevin,
Sorry to hear your health has started on a more rapid decline. Have you dual listed at another transplant hospital out of your current hospitals region? That might be good to go ahead and do if you haven’t. I assume you are getting your labs more regular so you can get higher up on the list as your MELD climbs.
I know how you feel and I do pray something comes through for you soon. Keep in touch with the group.
Mark
Hi Kevin,
I wish you all the very best and I am sure everything will work out well and you will have a transplant soon.
All the best and never ever lose hope and keep beeing optimistic.
Regards,
Joerg
Hi Rick,
Thank you very much for the insights. I will read more about Ayurveda and come back to you if I need an intro to Sascha. Thank you!
All the best!
Joerg
Kevin,
I hope something good happens for you soon.
Jeff
Hi. I’m in Canada & was just recently diagnosed with PSC but had issues for several years. My belief is that we can disease ourselves & we can heal ourselves. There is so much we don’t know. We’ve all learned environmental factors can cause many diseases including Cancer. I also feel if we find the right triggers or combinations, we can heal ourselves. Everybody’s different though. Our genetic makeup. Etc. What works for 1 may not work for another.
I’ve been doing alot of thinking about it. I had alot of food & product allergies when I was a baby. I had chicken pox. Mononucleosis. Etc. Like alot of diseases & suggestions here, some Dr’s think a childhood illness, cold or flu (etc) could have affected some of us differently. Weakened our systems so we’re not able to fight off disease the same way.
I wondered why I was diagnosed with FLD & NASH when I really didn’t eat much fast or processed food. What I’m thinking is maybe my bile ducts that weren’t up to par, caused the liver issues in the first place.
My favorite course was World Religion *& I’ve tried Western & Eastern medicines & practices.
It’s a scary diagnosis. But if we all band together, just maybe we’ll figure it out.
Idk what this cooling or heating food is either. Best of luck. Laurie 
Hi Mahmoud. Can you please elaborate on that? What exactly do you mean cooling?
Thanks.
Hi Frank.
I’m truly happy for you! Your story brought me so much hope!
Frank could you please provide more information on Dr. Cox in California? My husband has PSC and we are leaving Canada to move to CA and will definitely benefit from a good Dr.
Thank you very much.
Tala
Hi Tala
It means that drink or eat something that lower liver temperature
Such as chicory and common fumitory essence albeit under hepatologist supervision.
It is recommended that you drink on an empty stomach in the morning.
Regards
Hi Joerg,
The Bible says, “Physician, heal thyself.” Keep a positive mental attitude and work to learn as much as you can about UC and PSC. I had both. I have a new liver now and my UC is in remission. Your thought is a very important part of the healing process. Whatever you chose, meditation, Zen, prayer or psychotherapy, don’t neglect your mental condition. A male nurse asked me if I had been or was depressed. I said, not very often. He said anyone with a long-term serious disease like PSC that says depression doesn’t happen to them, is lying! Be honest with yourself. Seek help when needed. It is not taboo to talk about mental health with care professionals and family. It is all part of the complex illness known as PSC.
Hi Paul,
I totally agree with you. To be honest I am working a lot on my mental health. I am seeing mental performance coaches from time to time although I am a mental performance coach by myself. I am a big fan of meditation and that the mental state is vital to the overall condition.
Thank you and all the best to you.
Regards,
Joerg
Hi Joerg,
There is a direct liver chemistry link to brain function you should be aware of. As the liver performance deteriorates, ammonia is not cleaned from the blood efficiently. It causes forgetfulness and concentration problems. I was a chief financial officer for a public school district during my illness. As PSC reached its final stage with me, I could not focus of budgets, spreadsheets, formulas and reports. Despite taking the medicine (lactalose) prescribed by the doctor, my mental condition worsened to the point that I resigned. It was important to not be responsible for the finances in the condition I was in. The best news was that after my successful transplant all my mental alertness came back to normal. Ammonia is a factor in your mood and the choices you make to handle it. If you doctor hasn’t discussed cognitive impairment with you, ask the question and see what he/she has to say.
Paul
Tala,
Here’s his info…
Sorry for the delay!
Frank