# Treatment plan

**URL:** <https://forum.livingwithpsc.org/t/treatment-plan/297>\
**Category:** Life with Primary Sclerosing Cholangitis\
**Created:** [March 3, 2014, 6:04pm UTC](https://forum.livingwithpsc.org/t/treatment-plan/297 "2014-03-03T18:04:49Z")\
**Posts on this page:** 3\
**Page:** 1

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**Author:** ![Annie\_Rose](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/annie_rose/32/672_2.png) [@Annie\_Rose](https://forum.livingwithpsc.org/u/Annie_Rose)\
**Post date:** [March 3, 2014, 6:04pm UTC](https://forum.livingwithpsc.org/t/treatment-plan/297/1 "2014-03-03T18:04:49Z")

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HI I am wondering if anyone is having or had a similar treatment as I am about to begin. My doctor is treating me for cancer I may have in my bile ducts but hasn't seen yet to prevent it from spreading outside the liver. This procedure was begun at Mayo Clinic. This week I will begin radiation and take a chemo pills 2x a day for 15 days to be followed by other treatments. I am on a transplant list.Are there others on a transplant list? Are you taking this protocol?

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**Author:** ![Annie\_Rose](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/annie_rose/32/672_2.png) [@Annie\_Rose](https://forum.livingwithpsc.org/u/Annie_Rose)\
**Post date:** [March 4, 2014, 4:33am UTC](https://forum.livingwithpsc.org/t/treatment-plan/297/2 "2014-03-04T04:33:56Z")

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Stephen Cox (formerly Big Steel) said:

> Hi Annie Rose,  
>    
> I can't respond to your treatment plan as my situation was different. I do believe you are in excellent hands at the Mayo Clinic.  
> I noticed you said, " you may have bile duct cancer". Are your Doctors not certain? I suspect they are otherwise they wouldn't be acting so agressively with your treatment.  
>    
> Hopefully other folks will jump and add some comments but I wanted to wish the very best. Please, if you are able, keep us in the loop as to how you are dealing.  
>    
> Take very good care,  
>    
> Stephen
> 
> Hi Stephen, my doctors haven't seen it but presume I have because we have a high risk of getting cancer, so I am on a protocol.I go to Johns Hopkins but they follow the Mayo Clinic protocol, originated at the Mayo Clinic. I begin on Wed. I am concerned but I do trust the logic and experience of my doctor.That is why I was wondering if anyone else went this path. no one else has commented yet. Have a good week. I may not have access to my computer if I can't get the WIFI. Annie Rose

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**Author:** ![Annie\_Rose](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/annie_rose/32/672_2.png) [@Annie\_Rose](https://forum.livingwithpsc.org/u/Annie_Rose)\
**Post date:** [March 5, 2014, 7:38pm UTC](https://forum.livingwithpsc.org/t/treatment-plan/297/3 "2014-03-05T19:38:40Z")

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I appreciate you sharing your status with me. The PSC is a scary disease and I am finding unpredictable. I am getting treatment at Johns Hopkins hospital in Baltimore, Md. I am not sure where you live. I had my first radiation treatment this morning and will have another this afternoon. Plus I am taking Xeloda, chemotherapy pills 2, 2x a day. This will go on for 3 weeks. I will keep you in touch with my schedule too. I will keep you in my prayers for the best treatments from your doctors. When were you diagnosed? Did you become jaundice at the beginning?