# Psc? **URL:** \ **Category:** New Member Introductions\ **Created:** [August 28, 2014, 3:55am UTC](https://forum.livingwithpsc.org/t/psc/429 "2014-08-28T03:55:27Z")\ **Posts on this page:** 9\ **Page:** 2
**Author:** ![EAD3](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/ead3/32/256_2.png) [@EAD3](https://forum.livingwithpsc.org/u/EAD3)\ **Post date:** [August 28, 2014, 9:15pm UTC](https://forum.livingwithpsc.org/t/psc/429/21 "2014-08-28T21:15:56Z")
I agree that a liver biopsy should be considered. I have had at least 4 of them - minimal pain if done properly and risks are minimal. Have your phosphorous checked. My itching is controlled when phosphorous is near normal. EAD3 ---
**Author:** ![pistonhead76](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/pistonhead76/32/774_2.png) [@pistonhead76](https://forum.livingwithpsc.org/u/pistonhead76)\ **Post date:** [August 28, 2014, 9:32pm UTC](https://forum.livingwithpsc.org/t/psc/429/22 "2014-08-28T21:32:14Z")
![](https://us1.discourse-cdn.com/flex019/uploads/ben_psc_community/original/2X/2/2f54e18884112a5f21d3a446c5103ae730790a2c.jpg) **I just found this feature to compare certain tests Ive had over time at Cleveland.** ---
**Author:** ![pistonhead76](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/pistonhead76/32/774_2.png) [@pistonhead76](https://forum.livingwithpsc.org/u/pistonhead76)\ **Post date:** [August 28, 2014, 9:34pm UTC](https://forum.livingwithpsc.org/t/psc/429/23 "2014-08-28T21:34:39Z")
EAD3 said: > I agree that a liver biopsy should be considered. I have had at least 4 of them - minimal pain if done properly and risks are minimal. > Have your phosphorous checked. My itching is controlled when phosphorous is near normal. > EAD3 > > **Thanks, I need to write all this down. This group is great.** ---
**Author:** ![rippi](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/rippi/32/361_2.png) [@rippi](https://forum.livingwithpsc.org/u/rippi)\ **Post date:** [August 29, 2014, 10:45am UTC](https://forum.livingwithpsc.org/t/psc/429/24 "2014-08-29T10:45:16Z")
pistonhead76 said: > rippi said: > > > Hi, > > > > talking from my own experience I would follow Chaim [Boermeester](http://forum.livingwithpsc.org/forum/topic/listForContributor?user=18vk96shgdc0n) and think that you might have small duct PSC (my problem). > > > > Sludge in some bile ducts and in the gall bladder, strong to severe symptoms about every 10 to 15 years that disappear within 2 or 3 weeks, nothing found in MRCP and ERCP was my history. One out of four biopsies finally led to my diagnosis. > > > > It took 50 years (!!!!!!) to find the problem. Now at age 67 symptoms are "steady", but I can live with it. My doctors claim, that it's a defect I was born with. URSO and in the future perhaps NORURSO may help to clean out some of the sludge. I can live with it, but on MUCH lower speed I was used to. I still live, probably won't need a transplant, and that counts positive. > > > > Good luck to you and greetings > > > > Rippi > > > > **Hi Rippi,** > > > > **Thanks for your reply. Sorry to hear it took so long for them to figure it out. I hope I remember to tell the new doc at the liver center in Miami about the sludge in my gall bladder. That seems to be a common trend. I will do some research on small duct psc and bring it up. Whatever I have, my symptoms are frustrating. I run into mental blocks all the time and the fatigue is ridiculous. Im 38, male, and have 2 small kids. It seems my life has come to just working and sleeping and hoping the sleep was somewhat refreshing. Though it rarely ever is. I also noticed that if I drink alcohol the symptoms the next day are 10 fold in intensity and it takes days to slowly wear off. Almost like a week long hangover. Needless to say, I dont drink often.** > > > > **Hi,** > > > > **little alcohol may be too much! except for your birthday and may be New Years Eve try to avoid it completely. Only a spoonful of wine knocks me off, it's just not worth it!** > > > > **Regards and greetings from Germany** > > > > **Rippi** ---
**Author:** ![pistonhead76](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/pistonhead76/32/774_2.png) [@pistonhead76](https://forum.livingwithpsc.org/u/pistonhead76)\ **Post date:** [August 30, 2014, 2:48am UTC](https://forum.livingwithpsc.org/t/psc/429/25 "2014-08-30T02:48:08Z")
Thanks for all the help everyone. Someone mentioned this could be non alcoholic fatty liver disease. Could symptoms of that be this bad? ---
**Author:** ![Chaim\_B](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/chaim_b/32/14_2.png) [@Chaim\_B](https://forum.livingwithpsc.org/u/Chaim_B)\ **Post date:** [August 31, 2014, 7:26am UTC](https://forum.livingwithpsc.org/t/psc/429/26 "2014-08-31T07:26:09Z")
Hi, I don't know a lot about NAFLD, but a simple ultrasound would show the liver light up like a christmas tree because of the accumulated fat. I suspect that the doctors would have noticed that. Regards, Chaim ---
**Author:** ![ferretlove](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/ferretlove/32/767_2.png) [@ferretlove](https://forum.livingwithpsc.org/u/ferretlove)\ **Post date:** [September 3, 2014, 8:44pm UTC](https://forum.livingwithpsc.org/t/psc/429/27 "2014-09-03T20:44:49Z")
Hi There. Do you by any chance have ulcerative colitis? If you do then it might be small duct psc. it is really hard to diagnose small duct psc without UC. I hope it isn't psc. Ferretlove ---
**Author:** ![pistonhead76](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/pistonhead76/32/774_2.png) [@pistonhead76](https://forum.livingwithpsc.org/u/pistonhead76)\ **Post date:** [September 3, 2014, 8:57pm UTC](https://forum.livingwithpsc.org/t/psc/429/28 "2014-09-03T20:57:19Z")
ferretlove said: > Hi There. > > Do you by any chance have ulcerative colitis? If you do then it might be small duct psc. it is really hard to diagnose small duct psc without UC. I hope it isn't psc. > > Ferretlove > > **Hi Ferretlove,** > > **I dont know if I do or not. I just looked it up and I do have the symptoms. Well, except weight loss but that would be nice. But then again I have some symptoms of Crohns too. I must say, the nausea, fatigue, and brain fog have been so bad this past week. I cant wait to see the specialist on the 25th. Im so over this crap. Waking up exhausted after 10 hours of sleep is taking its toll on me.** ---
**Author:** ![ferretlove](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpsc.org/ferretlove/32/767_2.png) [@ferretlove](https://forum.livingwithpsc.org/u/ferretlove)\ **Post date:** [September 14, 2014, 12:21pm UTC](https://forum.livingwithpsc.org/t/psc/429/29 "2014-09-14T12:21:34Z")
I definitely understand all the symptoms you are having. I'm very sorry that you are suffering. Maybe you should ask your doctor for a colonoscopy. That way if you have ulcerative colitis or crohns they can fix that and properly diagnose your liver issue. All the best. Ferretlove pistonhead76 said: > ferretlove said: > > > Hi There. > > > > Do you by any chance have ulcerative colitis? If you do then it might be small duct psc. it is really hard to diagnose small duct psc without UC. I hope it isn't psc. > > > > Ferretlove > > > > **Hi Ferretlove,** > > > > **I dont know if I do or not. I just looked it up and I do have the symptoms. Well, except weight loss but that would be nice. But then again I have some symptoms of Crohns too. I must say, the nausea, fatigue, and brain fog have been so bad this past week. I cant wait to see the specialist on the 25th. Im so over this crap. Waking up exhausted after 10 hours of sleep is taking its toll on me.** [Previous page](https://forum.livingwithpsc.org/t/psc/429.md?page=1)