# New Member Introductions **URL:** https://forum.livingwithpsc.org/c/welcome/new-member-introductions/8.md [Latest](https://forum.livingwithpsc.org/latest.md) · [Categories](https://forum.livingwithpsc.org/categories.md) --- ## [About the New Member Introductions category](https://forum.livingwithpsc.org/t/about-the-new-member-introductions-category/14)
**Author:** [@system](https://forum.livingwithpsc.org/u/system)\ **Replies:** 43\ **Last updated:** [June 9, 2022, 1:48pm UTC](https://forum.livingwithpsc.org/t/about-the-new-member-introductions-category/14 "2022-06-09T13:48:20Z")
Tell us about yourself. We want to hear your story. --- ## [Hi New user here, parent with 16 old girl PSC-UC](https://forum.livingwithpsc.org/t/hi-new-user-here-parent-with-16-old-girl-psc-uc/5479)
**Author:** [@Mathew](https://forum.livingwithpsc.org/u/Mathew)\ **Replies:** 4\ **Last updated:** [December 22, 2025, 5:26pm UTC](https://forum.livingwithpsc.org/t/hi-new-user-here-parent-with-16-old-girl-psc-uc/5479 "2025-12-22T17:26:35Z")
Hi everybody just wanted to say hello and thank you all for this community and especially moderator-s who is doing their best. I am father of 16 teen girl diagnosed with UC from age 1 and PSC from age 8. Sorry for engli… --- ## [Diagnostic criteria and New member](https://forum.livingwithpsc.org/t/diagnostic-criteria-and-new-member/5600)
**Author:** [@lilly.mae](https://forum.livingwithpsc.org/u/lilly.mae)\ **Replies:** 7\ **Last updated:** [November 16, 2025, 1:41am UTC](https://forum.livingwithpsc.org/t/diagnostic-criteria-and-new-member/5600 "2025-11-16T01:41:04Z")
Hello everyone, I am Lilly a new member. I am 18 and have been living with Crohn’s disease for 9 years (dx @ 9yrs). In 2022 I started having abnormal stomach pain episodes, pain that would go on for hours and straight bi… --- ## [50/50 Chance I have PSC and I'm Freaking Out](https://forum.livingwithpsc.org/t/50-50-chance-i-have-psc-and-im-freaking-out/2864)
**Author:** [@MSNYC](https://forum.livingwithpsc.org/u/MSNYC)\ **Replies:** 20\ **Last updated:** [November 15, 2024, 2:00am UTC](https://forum.livingwithpsc.org/t/50-50-chance-i-have-psc-and-im-freaking-out/2864 "2024-11-15T02:00:21Z")
Hi Everybody, I’m a healthy (I do 150+ mile bike rides) mid-20s guy who showed elevated enzymes on a blood test about a year ago. I was referred to a hepatologist who did a wide array of blood tests, an ultrasound, and… --- ## [First time poster, long time lurker](https://forum.livingwithpsc.org/t/first-time-poster-long-time-lurker/5063)
**Author:** [@Buco](https://forum.livingwithpsc.org/u/Buco)\ **Replies:** 8\ **Last updated:** [November 13, 2024, 9:07pm UTC](https://forum.livingwithpsc.org/t/first-time-poster-long-time-lurker/5063 "2024-11-13T21:07:16Z")
Hello comrades. A little about myself. I’m 47, have had colitis for 39 years and psc for the last 10. Been in and out of hospitals like you all. As we all know this is a dogfight. Had a blockage in the bile ducts a cou… --- ## [New User - SillyGoose](https://forum.livingwithpsc.org/t/new-user-sillygoose/5394)
**Author:** [@SillyGoose](https://forum.livingwithpsc.org/u/SillyGoose)\ **Replies:** 6\ **Last updated:** [October 31, 2024, 1:58am UTC](https://forum.livingwithpsc.org/t/new-user-sillygoose/5394 "2024-10-31T01:58:53Z")
Hello. This is my story, which is not as bad as many that I have read. I will try and stay on point. In 2014 I had an ultrasound and was told that my gall bladder needed to be removed via keyhole surgery. Within week… --- ## [New here new to PSC?](https://forum.livingwithpsc.org/t/new-here-new-to-psc/5204)
**Author:** [@Lasardo](https://forum.livingwithpsc.org/u/Lasardo)\ **Replies:** 4\ **Last updated:** [March 16, 2023, 12:38am UTC](https://forum.livingwithpsc.org/t/new-here-new-to-psc/5204 "2023-03-16T00:38:43Z")
I’m 48. I have had Crohn’s dx. Since giving birth to my daughter in 2000 at age 26 after a 4th degree tear and removal of my gallbladder, appendix and uterus I had complications and received a permanent colonoscopy bag… --- ## [Hi, I'm new here](https://forum.livingwithpsc.org/t/hi-im-new-here/5151)
**Author:** [@Sam](https://forum.livingwithpsc.org/u/Sam)\ **Replies:** 11\ **Last updated:** [January 27, 2023, 3:07am UTC](https://forum.livingwithpsc.org/t/hi-im-new-here/5151 "2023-01-27T03:07:13Z")
Hi everybody. It was a pleasant surprise finding out about this community and I’ve enjoyed reading a lot of the posts so far. About me: Dad, Husband, Pilot. My guilty pleasures include reading comics and eating ice crea… --- ## [Just diagnosed with PSC](https://forum.livingwithpsc.org/t/just-diagnosed-with-psc/1074)
**Author:** [@MarLena](https://forum.livingwithpsc.org/u/MarLena)\ **Replies:** 37\ **Last updated:** [October 10, 2022, 7:55pm UTC](https://forum.livingwithpsc.org/t/just-diagnosed-with-psc/1074 "2022-10-10T19:55:45Z")
Hi. My name is MarLena and I am 47 years old. I'm a wife and a mother to two teens (19&15). I was diagnosed with PSC last week when I had my second ERCP to remove a stent and do a biopsy from a month ago when I was in … --- ## [Newly diagnosed with Colitis ulcerosa, possible psc](https://forum.livingwithpsc.org/t/newly-diagnosed-with-colitis-ulcerosa-possible-psc/4853)
**Author:** [@Caro](https://forum.livingwithpsc.org/u/Caro)\ **Replies:** 9\ **Last updated:** [February 11, 2022, 3:48am UTC](https://forum.livingwithpsc.org/t/newly-diagnosed-with-colitis-ulcerosa-possible-psc/4853 "2022-02-11T03:48:39Z")
Hi, I’m new here. I read lots of your stories, what a wonderful supporting group this is! Please excuse my English, it is not my native language and I sometimes have troubles finding the right words! Our son was diagnose… --- ## [Newly diagnosed, type 1 diabetic](https://forum.livingwithpsc.org/t/newly-diagnosed-type-1-diabetic/3433)
**Author:** [@joac](https://forum.livingwithpsc.org/u/joac)\ **Replies:** 7\ **Last updated:** [November 10, 2021, 12:16am UTC](https://forum.livingwithpsc.org/t/newly-diagnosed-type-1-diabetic/3433 "2021-11-10T00:16:48Z")
Hello all, I’m a 28 year old man who was just a few weeks ago diagnosed with PSC. I lived up to 22 years of age without a single health problem, blissfully unaware of how hard health issues can be. At 23 I was diagnose… --- ## [Newly diagnosed after a long year](https://forum.livingwithpsc.org/t/newly-diagnosed-after-a-long-year/4243)
**Author:** [@brad](https://forum.livingwithpsc.org/u/brad)\ **Replies:** 20\ **Last updated:** [August 17, 2021, 8:23pm UTC](https://forum.livingwithpsc.org/t/newly-diagnosed-after-a-long-year/4243 "2021-08-17T20:23:57Z")
In march 2019, I had an episode of nausea/vomiting with abdominal pain. I woke up the next morning jaundiced. I went to my PCP who drew labs and got an abdominal US. My LFT’s and Bilirubin were elevated, and the US showe… --- ## [New member intro](https://forum.livingwithpsc.org/t/new-member-intro/4690)
**Author:** [@Flyingcoho](https://forum.livingwithpsc.org/u/Flyingcoho)\ **Replies:** 29\ **Last updated:** [August 6, 2021, 9:03am UTC](https://forum.livingwithpsc.org/t/new-member-intro/4690 "2021-08-06T09:03:37Z")
Hi everyone. Thank you for allowing me to join your group. My 11 year old son was just diagnosed with PSC. His only symptom is itching, which Urso twice a day has solved. Recent MRI confirmed PSC in small bile ducts. He … --- ## [Provisional dx of PSC 10 years ago, first ERCP a few days ago](https://forum.livingwithpsc.org/t/provisional-dx-of-psc-10-years-ago-first-ercp-a-few-days-ago/4325)
**Author:** [@MBLand](https://forum.livingwithpsc.org/u/MBLand)\ **Replies:** 9\ **Last updated:** [January 18, 2021, 4:14pm UTC](https://forum.livingwithpsc.org/t/provisional-dx-of-psc-10-years-ago-first-ercp-a-few-days-ago/4325 "2021-01-18T16:14:37Z")
Hi all, I had my first ERCP this past Friday. Up to last week, I hadn’t had any PSC symptoms other than the occasional fatigue. A week ago, my LFTs spiked (ALP around 1200, total bilirubin got up to around 6, whereas it… --- ## [How long can you live without a liver transplant?](https://forum.livingwithpsc.org/t/how-long-can-you-live-without-a-liver-transplant/4254)
**Author:** [@Lance](https://forum.livingwithpsc.org/u/Lance)\ **Replies:** 1\ **Last updated:** [October 8, 2020, 2:03am UTC](https://forum.livingwithpsc.org/t/how-long-can-you-live-without-a-liver-transplant/4254 "2020-10-08T02:03:08Z")
Continuing the discussion from Newly diagnosed after a long year: Hi Brad, I have not been on this site for a couple of years. Just happened onto this due to looking at my junk mail. Brad, I could have written your sto… --- ## [NAFLD and fructose](https://forum.livingwithpsc.org/t/nafld-and-fructose/4183)
**Author:** [@Andy](https://forum.livingwithpsc.org/u/Andy)\ **Replies:** 1\ **Last updated:** [September 14, 2020, 4:10am UTC](https://forum.livingwithpsc.org/t/nafld-and-fructose/4183 "2020-09-14T04:10:31Z")
Hi everyone. A little over a year ago, before I was diagnosed we found out I had fatty liver and thought it might have been the cause of my elevated enzymes. I’ve been seeing my GI for about a decade and we never could … --- ## [Suddenly chronically sick - a reason to live your life](https://forum.livingwithpsc.org/t/suddenly-chronically-sick-a-reason-to-live-your-life/3891)
**Author:** [@Steffi](https://forum.livingwithpsc.org/u/Steffi)\ **Replies:** 13\ **Last updated:** [May 27, 2020, 4:21am UTC](https://forum.livingwithpsc.org/t/suddenly-chronically-sick-a-reason-to-live-your-life/3891 "2020-05-27T04:21:03Z")
Hi, I‘m Steffi. I always had sensitive skin and an immune system that was a little bit out of whack. I went do a dermatologist every few years with eczema and got Cortison cream. Except for that I was pretty healthy … --- ## [25 M Recently Diagnosed](https://forum.livingwithpsc.org/t/25-m-recently-diagnosed/3738)
**Author:** [@ConsciousJackfruit](https://forum.livingwithpsc.org/u/ConsciousJackfruit)\ **Replies:** 8\ **Last updated:** [May 24, 2020, 12:52am UTC](https://forum.livingwithpsc.org/t/25-m-recently-diagnosed/3738 "2020-05-24T00:52:28Z")
This is my first post here so I guess I will just tell my story from the beginning. About a month ago I went to my PCP for a routine physical. Everything appeared normal. I had never had a blood test before so my doctor … --- ## [When to worry](https://forum.livingwithpsc.org/t/when-to-worry/3732)
**Author:** [@42FinCanada](https://forum.livingwithpsc.org/u/42FinCanada)\ **Replies:** 3\ **Last updated:** [March 26, 2020, 6:26pm UTC](https://forum.livingwithpsc.org/t/when-to-worry/3732 "2020-03-26T18:26:16Z")
Hi. I am 42 and was diagnosed with PSC 10 years ago. At the time I was really sick, with significant weight loss (60lbs) and sky-high LFTs. After treatment for bacterial cholangitis, I felt better. But then I was diagnos… --- ## [Oldest person with PSC](https://forum.livingwithpsc.org/t/oldest-person-with-psc/580)
**Author:** [@Smittysgirl](https://forum.livingwithpsc.org/u/Smittysgirl)\ **Replies:** 47\ **Last updated:** [March 8, 2020, 9:29pm UTC](https://forum.livingwithpsc.org/t/oldest-person-with-psc/580 "2020-03-08T21:29:24Z")
Hi, I'm new here and have been diagnosed with PSC about 11 years ago. Also have UC but no flare ups for many years. Doing well and feeling well. My question is, how old (that's been documented) of the oldest living perso… --- ## [Gary from Australia](https://forum.livingwithpsc.org/t/gary-from-australia/1745)
**Author:** [@GazfromAus](https://forum.livingwithpsc.org/u/GazfromAus)\ **Replies:** 54\ **Last updated:** [January 17, 2020, 7:42pm UTC](https://forum.livingwithpsc.org/t/gary-from-australia/1745 "2020-01-17T19:42:28Z")
Hey all Gary from Australia here. Just read a few stories and thought I would join up and say g’day. The writing may be upside down for you Americans as we live on the right side of the world down under. (Sorry need some… --- ## [Its not all bad! A message of hope](https://forum.livingwithpsc.org/t/its-not-all-bad-a-message-of-hope/3557)
**Author:** [@LeslieTheCanadian](https://forum.livingwithpsc.org/u/LeslieTheCanadian)\ **Replies:** 4\ **Last updated:** [January 12, 2020, 12:24am UTC](https://forum.livingwithpsc.org/t/its-not-all-bad-a-message-of-hope/3557 "2020-01-12T00:24:55Z")
Hi there, Im new! Diagnosed colitis in 2007, which changed to crohns a few years ago. Had ‘fatty liver’ and high enzymes since I was 19. Im 37 now. Diagnosed PSC in 2012 I think? Im Canadian but was living in Japan … --- ## [Misdiagnosed according to ercp](https://forum.livingwithpsc.org/t/misdiagnosed-according-to-ercp/3435)
**Author:** [@daviss](https://forum.livingwithpsc.org/u/daviss)\ **Replies:** 3\ **Last updated:** [December 13, 2019, 2:44am UTC](https://forum.livingwithpsc.org/t/misdiagnosed-according-to-ercp/3435 "2019-12-13T02:44:52Z")
Hello. I was recently last year diagnosed with psc via multiple mrcp and elevated liver function tests and symptoms. Couple days ago I had an ercp performed and was told no signs of psc and that my imaging test were over… --- ## [Old diagnosis, new member](https://forum.livingwithpsc.org/t/old-diagnosis-new-member/3305)
**Author:** [@dgs](https://forum.livingwithpsc.org/u/dgs)\ **Replies:** 6\ **Last updated:** [August 31, 2019, 5:30pm UTC](https://forum.livingwithpsc.org/t/old-diagnosis-new-member/3305 "2019-08-31T17:30:40Z")
Hi everyone, I was diagnosed with PSC when I was eleven. However, since being diagnosed I have, thankfully, yet to experience any symptoms that are associated with the disease. My parents never talked with me about my P… --- ## [My thoughts after being diagnosed in 2018](https://forum.livingwithpsc.org/t/my-thoughts-after-being-diagnosed-in-2018/3292)
**Author:** [@AndyLDN](https://forum.livingwithpsc.org/u/AndyLDN)\ **Replies:** 1\ **Last updated:** [August 12, 2019, 1:34am UTC](https://forum.livingwithpsc.org/t/my-thoughts-after-being-diagnosed-in-2018/3292 "2019-08-12T01:34:15Z")
Hi there, I’m new to the forum and I wanted to share a little bit of my story and thoughts about PSC after being diagnosed in September last year. I’m 27, male. Before last year, I didn’t have any symptoms of PSC or Cr… --- ## [PSC Diagnosed in 2013](https://forum.livingwithpsc.org/t/psc-diagnosed-in-2013/1342)
**Author:** [@mithilchandok](https://forum.livingwithpsc.org/u/mithilchandok)\ **Replies:** 32\ **Last updated:** [July 2, 2019, 1:07am UTC](https://forum.livingwithpsc.org/t/psc-diagnosed-in-2013/1342 "2019-07-02T01:07:57Z")
Hi People, My PSC started in 2013, I had severe body itching all over my body, when I visited a general physician he recommended to have an ultrasound abdomen, after various scans and tests it was confirmed I have PSC,… --- ## [New diagnosis & member](https://forum.livingwithpsc.org/t/new-diagnosis-member/2717)
**Author:** [@Ms.Maintenance](https://forum.livingwithpsc.org/u/Ms.Maintenance)\ **Replies:** 19\ **Last updated:** [July 2, 2019, 1:01am UTC](https://forum.livingwithpsc.org/t/new-diagnosis-member/2717 "2019-07-02T01:01:11Z")
Hi I’m new to the site. My name is Laurie & I’m from :canada:. I’ve had problems on & off for yrs with liver enzymes. About 2 yrs ago my specialist changed. The new Doc started running various tests that have taken almos… --- ## [New Diagnosis for 6 year old son](https://forum.livingwithpsc.org/t/new-diagnosis-for-6-year-old-son/3076)
**Author:** [@tmw82](https://forum.livingwithpsc.org/u/tmw82)\ **Replies:** 24\ **Last updated:** [June 23, 2019, 7:01pm UTC](https://forum.livingwithpsc.org/t/new-diagnosis-for-6-year-old-son/3076 "2019-06-23T19:01:22Z")
Hello, My son (Gavin) was just diagnosed with UC/AIH/PCS. As you can imagine my wife and I were floored by this diagnosis. Below is a little background and some questions. Thank you in advance to anyone who replies. … --- ## [MRI оr CT?](https://forum.livingwithpsc.org/t/mri-r-ct/3093)
**Author:** [@Belgium22](https://forum.livingwithpsc.org/u/Belgium22)\ **Replies:** 4\ **Last updated:** [May 5, 2019, 1:14am UTC](https://forum.livingwithpsc.org/t/mri-r-ct/3093 "2019-05-05T01:14:58Z")
Hi everybody! I am from Netherlands and new here. Happy to find your support here.May be someone can give me advice, what is better for to diagnose PSC MRI or CT scan? I would like to do it in private cliniqe, while i… --- ## [Diagnosed yesterday](https://forum.livingwithpsc.org/t/diagnosed-yesterday/1762)
**Author:** [@Idoc](https://forum.livingwithpsc.org/u/Idoc)\ **Replies:** 56\ **Last updated:** [April 9, 2019, 8:48pm UTC](https://forum.livingwithpsc.org/t/diagnosed-yesterday/1762 "2019-04-09T20:48:32Z")
Hello. I’m a 32 year old single lady who is also an optometrist (eye doc). I would like to get married and have kids one day. I was just diagnosed yesterday by MRI. I was diagnosed in 2005 with autoimmune hepatitis and 2… [Next page](https://forum.livingwithpsc.org/c/welcome/new-member-introductions/8.md?page=1)