# Let's talk about Transplants **URL:** https://forum.livingwithpsc.org/c/symptoms-and-treatment/lets-talk-about-transplants/11.md [Latest](https://forum.livingwithpsc.org/latest.md) · [Categories](https://forum.livingwithpsc.org/categories.md) --- ## [About the Let's talk about Transplants category](https://forum.livingwithpsc.org/t/about-the-lets-talk-about-transplants-category/17)
**Author:** [@system](https://forum.livingwithpsc.org/u/system)\ **Replies:** 0\ **Last updated:** [June 6, 2016, 9:16am UTC](https://forum.livingwithpsc.org/t/about-the-lets-talk-about-transplants-category/17 "2016-06-06T09:16:59Z")
This is the place to talk about all things transplant-related. Personal stories and experiences, pre-op preparations, post-op recovery, and emotions surrounding transplants. If you have had a successful transplant, we ho… --- ## [Living Donor Needed for PSC Patient (Article)](https://forum.livingwithpsc.org/t/living-donor-needed-for-psc-patient-article/5666)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 2\ **Last updated:** [February 2, 2026, 3:18am UTC](https://forum.livingwithpsc.org/t/living-donor-needed-for-psc-patient-article/5666 "2026-02-02T03:18:10Z")
Good afternoon PSC Family, I came across this article on a transplant site this afternoon about a Canadian woman desperately needing a liver transplant. If you have friends or family in Canada or the USA that you think… --- ## [Evusheld treatment](https://forum.livingwithpsc.org/t/evusheld-treatment/4954)
**Author:** [@Tobataska](https://forum.livingwithpsc.org/u/Tobataska)\ **Replies:** 4\ **Last updated:** [April 13, 2022, 7:10pm UTC](https://forum.livingwithpsc.org/t/evusheld-treatment/4954 "2022-04-13T19:10:45Z")
Hi all, I just received the two shot Evusheld monoclonal antibody treatment. It’s the new pre-exposure drug for immunocompromised people who may not respond to the Covid vaccine. Has anyone else had this treatment yet… --- ## [Post transplant ascites](https://forum.livingwithpsc.org/t/post-transplant-ascites/4783)
**Author:** [@california](https://forum.livingwithpsc.org/u/california)\ **Replies:** 4\ **Last updated:** [December 7, 2021, 4:55pm UTC](https://forum.livingwithpsc.org/t/post-transplant-ascites/4783 "2021-12-07T16:55:25Z")
Discharged yesterday 24 days post LDLT from my brother. Experienced just about every complication except hepatic artery thrombosis (severe ACR, sepsis, multiple ileus events, AKI…) and my body is now barely recognizable.… --- ## [Vanco and Covid Vaccine](https://forum.livingwithpsc.org/t/vanco-and-covid-vaccine/4666)
**Author:** [@Freddy](https://forum.livingwithpsc.org/u/Freddy)\ **Replies:** 3\ **Last updated:** [July 16, 2021, 9:56am UTC](https://forum.livingwithpsc.org/t/vanco-and-covid-vaccine/4666 "2021-07-16T09:56:46Z")
Hey everyone, I had a liver transplant 4 years ago and since then I’ve gone back and forth with battling colitis and cdiff infections. Even when cdiff is negative the only thing that works and helps my colitis is vancomy… --- ## [Second liver birthday](https://forum.livingwithpsc.org/t/second-liver-birthday/4642)
**Author:** [@Tobataska](https://forum.livingwithpsc.org/u/Tobataska)\ **Replies:** 3\ **Last updated:** [June 30, 2021, 9:02pm UTC](https://forum.livingwithpsc.org/t/second-liver-birthday/4642 "2021-06-30T21:02:48Z")
I’m happy to report that today is my two year anniversary of my liver transplant! Things are looking good, and I find I have very little to complain about. I am so grateful to my donor’s family, my own family and friend… --- ## [Left or right lobe](https://forum.livingwithpsc.org/t/left-or-right-lobe/4623)
**Author:** [@wqc](https://forum.livingwithpsc.org/u/wqc)\ **Replies:** 12\ **Last updated:** [June 19, 2021, 9:52pm UTC](https://forum.livingwithpsc.org/t/left-or-right-lobe/4623 "2021-06-19T21:52:02Z")
Hi all, I’ve read this board for a while and special thanks for putting it up for us PSC patients. I’m currently in late stage 4 liver disease (cirrhosis), raging chronic cholengitis (daily pain and lethargy), no cance… --- ## [Study COVID-19 vaccine John Hopkins](https://forum.livingwithpsc.org/t/study-covid-19-vaccine-john-hopkins/4466)
**Author:** [@Mike](https://forum.livingwithpsc.org/u/Mike)\ **Replies:** 1\ **Last updated:** [February 23, 2021, 3:14am UTC](https://forum.livingwithpsc.org/t/study-covid-19-vaccine-john-hopkins/4466 "2021-02-23T03:14:36Z")
Hi, I am trying to find out more on the below study at John Hopkins. It’s related to COVID 19 vaccine on post transplant patients ( I think ). Anyone heard of the same or know more about it? If not and you find out … --- ## [New transplant](https://forum.livingwithpsc.org/t/new-transplant/2859)
**Author:** [@SalmonRiver001](https://forum.livingwithpsc.org/u/SalmonRiver001)\ **Replies:** 28\ **Last updated:** [February 3, 2021, 2:28am UTC](https://forum.livingwithpsc.org/t/new-transplant/2859 "2021-02-03T02:28:10Z")
Hi,.all. I wanted to share that I received a new liver 11/29-30/2018 My MELD had spiked to 38 and I got lucky. Things are going great so far. Not sure if it’s appropriate, but thought that some might be interested in an… --- ## [Transplant Anniversary](https://forum.livingwithpsc.org/t/transplant-anniversary/3259)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 13\ **Last updated:** [July 24, 2020, 3:58am UTC](https://forum.livingwithpsc.org/t/transplant-anniversary/3259 "2020-07-24T03:58:02Z")
Very thankful to be able to celebrate the 4-year anniversary of my liver transplant 7-23-2015. I would not be here today without that life-saving transplant. I was thankful to have the privilege this past weekend to m… --- ## [My Upcoming Transplant](https://forum.livingwithpsc.org/t/my-upcoming-transplant/3209)
**Author:** [@Tobataska](https://forum.livingwithpsc.org/u/Tobataska)\ **Replies:** 16\ **Last updated:** [December 12, 2019, 6:57am UTC](https://forum.livingwithpsc.org/t/my-upcoming-transplant/3209 "2019-12-12T06:57:59Z")
Hi all, I’m Tobin, and after using this site as an information resource for the last year or so, I’ve decided to officially join. I’ve been diagnosed for almost 2 years with PSC, and UNOS listed just in April. I have b… --- ## [Ed Henry discusses emotional decision to donate part of his liver to his sister](https://forum.livingwithpsc.org/t/ed-henry-discusses-emotional-decision-to-donate-part-of-his-liver-to-his-sister/3246)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 0\ **Last updated:** [July 7, 2019, 5:50pm UTC](https://forum.livingwithpsc.org/t/ed-henry-discusses-emotional-decision-to-donate-part-of-his-liver-to-his-sister/3246 "2019-07-07T17:50:29Z")
Excellent feature on living donor transplant. I encourage you to not only watch the video but read the extended article. Mark --- ## [Post Transplant Mucus?](https://forum.livingwithpsc.org/t/post-transplant-mucus/2869)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 22\ **Last updated:** [March 9, 2019, 12:20am UTC](https://forum.livingwithpsc.org/t/post-transplant-mucus/2869 "2019-03-09T00:20:45Z")
Hi All, Has anyone experienced post-transplant mucus post-transplant? This is something I’ve been battling since transplant. Seems like I always have some sort of cough due to water/mucus forming in my throat. I asked… --- ## [OPTN/UNOS Board approves updated liver distribution system](https://forum.livingwithpsc.org/t/optn-unos-board-approves-updated-liver-distribution-system/2874)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 2\ **Last updated:** [December 20, 2018, 3:36am UTC](https://forum.livingwithpsc.org/t/optn-unos-board-approves-updated-liver-distribution-system/2874 "2018-12-20T03:36:58Z")
I just heard of this decision tonight. It has been in the works for sometime now, but this article is posted on the UNOS web site. I’d encourage all to read. Mark --- ## [Pre-transplant issues](https://forum.livingwithpsc.org/t/pre-transplant-issues/2781)
**Author:** [@SalmonRiver001](https://forum.livingwithpsc.org/u/SalmonRiver001)\ **Replies:** 6\ **Last updated:** [October 29, 2018, 4:39am UTC](https://forum.livingwithpsc.org/t/pre-transplant-issues/2781 "2018-10-29T04:39:13Z")
Hi girls and boys. I have been in the hospital since Sunday night as a backup for livers. Initially there were two and they went to the primary recipients. Then a third liver came into the picture. The donor is also prov… --- ## [Living Transplant low MELD exceptions](https://forum.livingwithpsc.org/t/living-transplant-low-meld-exceptions/1036)
**Author:** [@TxPapa728](https://forum.livingwithpsc.org/u/TxPapa728)\ **Replies:** 8\ **Last updated:** [October 13, 2018, 1:49am UTC](https://forum.livingwithpsc.org/t/living-transplant-low-meld-exceptions/1036 "2018-10-13T01:49:51Z")
I was diagnosed a year ago and at the time the thought was cholangiocarcinoma. After two ERCP's and removal of dog food sized stones I was diagnosed with PSC. I had a precancerous tumor in my ducts so the last year has b… --- ## [Enlarged belly after transplant](https://forum.livingwithpsc.org/t/enlarged-belly-after-transplant/2667)
**Author:** [@Mike](https://forum.livingwithpsc.org/u/Mike)\ **Replies:** 3\ **Last updated:** [September 29, 2018, 3:46pm UTC](https://forum.livingwithpsc.org/t/enlarged-belly-after-transplant/2667 "2018-09-29T15:46:08Z")
I am into month 4 after my liver transplant. I was close to underweight before transplant and i am at the border line to normal weight for my height (5’9"). I noticed my belly growing (sticks out) as i gain weight. I hav… --- ## [Transplant recovery advice](https://forum.livingwithpsc.org/t/transplant-recovery-advice/1972)
**Author:** [@Frank](https://forum.livingwithpsc.org/u/Frank)\ **Replies:** 5\ **Last updated:** [August 31, 2018, 2:56pm UTC](https://forum.livingwithpsc.org/t/transplant-recovery-advice/1972 "2018-08-31T14:56:54Z")
I’m expecting a transplant any day now, and I’m hoping to get some shared experience and maybe a few pointers. Part of me is nervous about the big surgery, part of me is excited that there’s a chance I will go back to “… --- ## [Medic Alert Necklace/Bracelet After Transplant](https://forum.livingwithpsc.org/t/medic-alert-necklace-bracelet-after-transplant/739)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 2\ **Last updated:** [August 6, 2018, 11:33pm UTC](https://forum.livingwithpsc.org/t/medic-alert-necklace-bracelet-after-transplant/739 "2018-08-06T23:33:59Z")
Dear Group. I wanted to show you a photo of a medical alert necklace I ordered for myself. The transplant book and other things I have read online really stressed the need of one of these for those who had had transpla… --- ## [3-Year Transplant Anniversary](https://forum.livingwithpsc.org/t/3-year-transplant-anniversary/2542)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 8\ **Last updated:** [July 31, 2018, 12:05am UTC](https://forum.livingwithpsc.org/t/3-year-transplant-anniversary/2542 "2018-07-31T00:05:28Z")
This weekend marks my 3-year transplant anniversary. I wanted to post this weekend giving gratitude and thanksgiving to the Lord first of all for sparing my life when I was at the point of death, and secondly to thank m… --- ## [2 weeks post tx still in hospital with high WBC](https://forum.livingwithpsc.org/t/2-weeks-post-tx-still-in-hospital-with-high-wbc/2527)
**Author:** [@RoseSharron](https://forum.livingwithpsc.org/u/RoseSharron)\ **Replies:** 8\ **Last updated:** [July 28, 2018, 4:13am UTC](https://forum.livingwithpsc.org/t/2-weeks-post-tx-still-in-hospital-with-high-wbc/2527 "2018-07-28T04:13:45Z")
Dear wonderful friends, I write this post still in amazement that we got a surprise transplant call at 3am on July 2, 2018 !! My faith in God being at work in the world is sealed! Also the faith and encouragement of th… --- ## [Liver transplant Gen Y Roux procedure](https://forum.livingwithpsc.org/t/liver-transplant-gen-y-roux-procedure/2504)
**Author:** [@Mike](https://forum.livingwithpsc.org/u/Mike)\ **Replies:** 4\ **Last updated:** [July 2, 2018, 4:29am UTC](https://forum.livingwithpsc.org/t/liver-transplant-gen-y-roux-procedure/2504 "2018-07-02T04:29:29Z")
Hi All, I got my liver transplant 4 weeks ago. The first month has been difficult as each week shows signs of improvement. Appetite is improving gradually. Has anyone had a gen y roux procedure done? I had this procedur… --- ## [Finished transplant evaluation](https://forum.livingwithpsc.org/t/finished-transplant-evaluation/2479)
**Author:** [@SalmonRiver001](https://forum.livingwithpsc.org/u/SalmonRiver001)\ **Replies:** 16\ **Last updated:** [June 30, 2018, 12:49am UTC](https://forum.livingwithpsc.org/t/finished-transplant-evaluation/2479 "2018-06-30T00:49:55Z")
Hi girls and boys. Yesterday I finished the 4th and final day of my evaluation for transplant at the UWMC in Seattle. I have just a few more tests and odds and ends to get finished up over the next couple of weeks. So, … --- ## [Pins and needles post transplant](https://forum.livingwithpsc.org/t/pins-and-needles-post-transplant/2443)
**Author:** [@panicz](https://forum.livingwithpsc.org/u/panicz)\ **Replies:** 5\ **Last updated:** [June 14, 2018, 5:01am UTC](https://forum.livingwithpsc.org/t/pins-and-needles-post-transplant/2443 "2018-06-14T05:01:41Z")
Before the transplant I was suffering from itching, which would usually start in the evening or at night. It was proper itching - I had to scratch. Roughly at the beginning on 2018 my itching became heat-induced pins and… --- ## [Post TX Fog?](https://forum.livingwithpsc.org/t/post-tx-fog/2401)
**Author:** [@Gloria](https://forum.livingwithpsc.org/u/Gloria)\ **Replies:** 9\ **Last updated:** [June 13, 2018, 6:29pm UTC](https://forum.livingwithpsc.org/t/post-tx-fog/2401 "2018-06-13T18:29:53Z")
Hello All, I haven’t been as active on the site as I use to (or as I should be) because I am having a hard time remembering our life pre-transplant. My husband feels the same. I feel as though I woke up from a dream and… --- ## [Transplant evaluation advice](https://forum.livingwithpsc.org/t/transplant-evaluation-advice/2361)
**Author:** [@SalmonRiver001](https://forum.livingwithpsc.org/u/SalmonRiver001)\ **Replies:** 2\ **Last updated:** [June 13, 2018, 6:54am UTC](https://forum.livingwithpsc.org/t/transplant-evaluation-advice/2361 "2018-06-13T06:54:36Z")
Hello, I should be receiving a call soon to schedule an appointment for a week-long transplant evaluation. Would anyone share any advice that they might have from their experience with this? With my physical limitations … --- ## [Upcoming Webinar:Living Donor Liver Transplantation- What Patients and Donors Need to Know](https://forum.livingwithpsc.org/t/upcoming-webinar-living-donor-liver-transplantation-what-patients-and-donors-need-to-know/2170)
**Author:** [@fcmmark](https://forum.livingwithpsc.org/u/fcmmark)\ **Replies:** 2\ **Last updated:** [March 8, 2018, 10:13pm UTC](https://forum.livingwithpsc.org/t/upcoming-webinar-living-donor-liver-transplantation-what-patients-and-donors-need-to-know/2170 "2018-03-08T22:13:12Z")
This post is for an upcoming Webinar sponsored by the American Liver Association regarding Living Donor Transplants for anyone interested. You must register to participate. \[image\] Link to Register - https://register.… --- ## [Life with PSC after transplant](https://forum.livingwithpsc.org/t/life-with-psc-after-transplant/2124)
**Author:** [@Tsohg](https://forum.livingwithpsc.org/u/Tsohg)\ **Replies:** 3\ **Last updated:** [February 16, 2018, 1:35am UTC](https://forum.livingwithpsc.org/t/life-with-psc-after-transplant/2124 "2018-02-16T01:35:32Z")
So I have been learning a lot about PSC. One thing I have not been able to find is, what is to be expected health wise after a transplant (assuming all goes well with that)? --- ## [Received my new liver](https://forum.livingwithpsc.org/t/received-my-new-liver/1518)
**Author:** [@JeffDC1](https://forum.livingwithpsc.org/u/JeffDC1)\ **Replies:** 30\ **Last updated:** [December 30, 2017, 7:41pm UTC](https://forum.livingwithpsc.org/t/received-my-new-liver/1518 "2017-12-30T19:41:18Z")
I received my new liver on the evening of June 7, 2017. With a lowish meld, I had colangitis in late March, again in late April along with sepsis, and hospitalized again in early May with abdominal pain. My doc was ab… --- ## [Post liver transplant - RECOVERY](https://forum.livingwithpsc.org/t/post-liver-transplant-recovery/185)
**Author:** [@MEM](https://forum.livingwithpsc.org/u/MEM)\ **Replies:** 29\ **Last updated:** [December 29, 2017, 3:26pm UTC](https://forum.livingwithpsc.org/t/post-liver-transplant-recovery/185 "2017-12-29T15:26:54Z")
Hello, I'd like to share opinions on RECOVERY. I'm two months post transplant. I'm just now beginning to gain weight again. I was at 220 lbs prior to the surgery, and in decent physical condition. I had no other medica… [Next page](https://forum.livingwithpsc.org/c/symptoms-and-treatment/lets-talk-about-transplants/11.md?page=1)