# Blog **URL:** https://forum.livingwithpsc.org/c/general/blog/5.md [Latest](https://forum.livingwithpsc.org/latest.md) · [Categories](https://forum.livingwithpsc.org/categories.md) --- ## [About the Blog category](https://forum.livingwithpsc.org/t/about-the-blog-category/11)
**Author:** [@system](https://forum.livingwithpsc.org/u/system)\ **Replies:** 0\ **Last updated:** [June 6, 2016, 9:16am UTC](https://forum.livingwithpsc.org/t/about-the-blog-category/11 "2016-06-06T09:16:58Z")
Resource copy of Blogs from old site --- ## [Weird stuff](https://forum.livingwithpsc.org/t/weird-stuff/860)
**Author:** [@Pandora](https://forum.livingwithpsc.org/u/Pandora)\ **Replies:** 4\ **Last updated:** [March 2, 2016, 5:35pm UTC](https://forum.livingwithpsc.org/t/weird-stuff/860 "2016-03-02T17:35:55Z")
I just wanted to know if anyone else is/has experienced the following; dizzyness muscle weakness change in vision EXTREME shaking/twitching of the hands and arms, causing a decrease in fine motor skill a… --- ## [Ultrasound](https://forum.livingwithpsc.org/t/ultrasound/911)
**Author:** [@colbybhearn](https://forum.livingwithpsc.org/u/colbybhearn)\ **Replies:** 0\ **Last updated:** [February 24, 2016, 5:08am UTC](https://forum.livingwithpsc.org/t/ultrasound/911 "2016-02-24T05:08:08Z")
My liver numbers have been a bit elevated recently, as shown by blood work. My doctor ordered an ultrasound to check for narrowing and strictures in the billiary tree, and that ultrasound was last week. I'll hear from … --- ## [My story](https://forum.livingwithpsc.org/t/my-story/910)
**Author:** [@Rocca](https://forum.livingwithpsc.org/u/Rocca)\ **Replies:** 0\ **Last updated:** [January 18, 2016, 7:42pm UTC](https://forum.livingwithpsc.org/t/my-story/910 "2016-01-18T19:42:49Z")
I am 67years old and have had ulcerative colitis on and for 30 years although I have been clear for the last 5 years On my last visit to ,my uc consultant he was worried about raised liver count and referred me to Heptol… --- ## [PSC Transplant Rejection Risk](https://forum.livingwithpsc.org/t/psc-transplant-rejection-risk/903)
**Author:** [@Paul\_H](https://forum.livingwithpsc.org/u/Paul_H)\ **Replies:** 4\ **Last updated:** [December 20, 2015, 4:13am UTC](https://forum.livingwithpsc.org/t/psc-transplant-rejection-risk/903 "2015-12-20T04:13:02Z")
I saw my post transplant hepatologist yesterday for my annual visit. I had my transplant 3 years ago. He told me that PSC patients that have been transplanted have a higher than average risk of organ rejection. Has anyo… --- ## [Ursodiol issue](https://forum.livingwithpsc.org/t/ursodiol-issue/906)
**Author:** [@GmaTD53](https://forum.livingwithpsc.org/u/GmaTD53)\ **Replies:** 7\ **Last updated:** [December 20, 2015, 12:58am UTC](https://forum.livingwithpsc.org/t/ursodiol-issue/906 "2015-12-20T00:58:51Z")
My husband was diagnosed with PSC in 1997. He was monitored with regular labs, Ultrasounds, & eventual MRI's and was very stable until August of 2014. He was on Ursodiol from about 2000 & the dose was higher than he's on… --- ## [Don't know where to start](https://forum.livingwithpsc.org/t/dont-know-where-to-start/901)
**Author:** [@Di1](https://forum.livingwithpsc.org/u/Di1)\ **Replies:** 2\ **Last updated:** [December 12, 2015, 12:46am UTC](https://forum.livingwithpsc.org/t/dont-know-where-to-start/901 "2015-12-12T00:46:11Z")
I have been diagnosed withUC andPsc. My Gastro doc has been my doc however I saw a liver spec. I had a biospy and he wanted to do an ERCP I had had one years before. My Gastro doc says that they can do aan MRCP without t… --- ## [Wondering about the future](https://forum.livingwithpsc.org/t/wondering-about-the-future/902)
**Author:** [@Still\_stunned](https://forum.livingwithpsc.org/u/Still_stunned)\ **Replies:** 4\ **Last updated:** [December 12, 2015, 12:41am UTC](https://forum.livingwithpsc.org/t/wondering-about-the-future/902 "2015-12-12T00:41:54Z")
For over two years, I have been a reader and not a writer on this Blog. Now I would love to hear from some of you! After a little over two years since my last stents were removed, and being mostly asymptomatic, I began… --- ## [Going to Duke for my first appointment](https://forum.livingwithpsc.org/t/going-to-duke-for-my-first-appointment/909)
**Author:** [@Tree27](https://forum.livingwithpsc.org/u/Tree27)\ **Replies:** 2\ **Last updated:** [December 12, 2015, 12:14am UTC](https://forum.livingwithpsc.org/t/going-to-duke-for-my-first-appointment/909 "2015-12-12T00:14:44Z")
Thursday I will be going to Duke for my first appointment with DR. Carl Berg. Dr. Hornbuckle who is my GI doctor here in Norfolk VA says that it is time that I go to Duke because my liver enzymes keep going up. Everythin… --- ## [If you have a question and want feedback, please use the Discussion Forum](https://forum.livingwithpsc.org/t/if-you-have-a-question-and-want-feedback-please-use-the-discussion-forum/908)
**Author:** [@Madere\_dancermom](https://forum.livingwithpsc.org/u/Madere_dancermom)\ **Replies:** 0\ **Last updated:** [May 30, 2015, 2:26pm UTC](https://forum.livingwithpsc.org/t/if-you-have-a-question-and-want-feedback-please-use-the-discussion-forum/908 "2015-05-30T14:26:08Z")
Blogs is a place for personal reflections. For questions that you would like our members to consider and respond to, please use the discussion forum. --- ## [Does this potential inflammatory-blocking drug have a place in PSC?](https://forum.livingwithpsc.org/t/does-this-potential-inflammatory-blocking-drug-have-a-place-in-psc/907)
**Author:** [@MrTwissel](https://forum.livingwithpsc.org/u/MrTwissel)\ **Replies:** 0\ **Last updated:** [May 20, 2015, 7:04pm UTC](https://forum.livingwithpsc.org/t/does-this-potential-inflammatory-blocking-drug-have-a-place-in-psc/907 "2015-05-20T19:04:31Z")
http://www.irishtimes.com/news/science/scientists-identify-drug-that-could-block-multiple-sclerosis-1.2106209 --- ## [Interesting (and alarming) update for those on Ursodiol!](https://forum.livingwithpsc.org/t/interesting-and-alarming-update-for-those-on-ursodiol/905)
**Author:** [@Semperfidelis1964](https://forum.livingwithpsc.org/u/Semperfidelis1964)\ **Replies:** 24\ **Last updated:** [April 17, 2015, 2:20am UTC](https://forum.livingwithpsc.org/t/interesting-and-alarming-update-for-those-on-ursodiol/905 "2015-04-17T02:20:17Z")
I'm not sure how many others are on Ursodiol, but I got some rather alarming news from my GI Doctor today. I'm in the early stages of PSC (after having had Ulcerative Colitis for close to 25 years). One of the drugs I … --- ## [Local Fundraiser for Ben's Friends](https://forum.livingwithpsc.org/t/local-fundraiser-for-bens-friends/904)
**Author:** [@Scott\_Orn](https://forum.livingwithpsc.org/u/Scott_Orn)\ **Replies:** 0\ **Last updated:** [March 22, 2015, 3:34pm UTC](https://forum.livingwithpsc.org/t/local-fundraiser-for-bens-friends/904 "2015-03-22T15:34:15Z")
I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends." It was a big s… --- ## [Stomach bug](https://forum.livingwithpsc.org/t/stomach-bug/897)
**Author:** [@Gers\_man](https://forum.livingwithpsc.org/u/Gers_man)\ **Replies:** 3\ **Last updated:** [February 13, 2015, 3:18am UTC](https://forum.livingwithpsc.org/t/stomach-bug/897 "2015-02-13T03:18:53Z")
This past 2 weeks I have just not felt right. It felt like something going on in my stomach that should not. My doctor took blood samples. He phoned me days later and said that my bloods were not good and to go back in … --- ## [New to Group and Disease, help!](https://forum.livingwithpsc.org/t/new-to-group-and-disease-help/900)
**Author:** [@Christine](https://forum.livingwithpsc.org/u/Christine)\ **Replies:** 4\ **Last updated:** [November 22, 2014, 8:05pm UTC](https://forum.livingwithpsc.org/t/new-to-group-and-disease-help/900 "2014-11-22T20:05:45Z")
In October 2011, I went to be tested to donate a kidney to a young man in my community and my blood work and levels were great! I was almost a perfect match, but because it was his 2nd kidney his antibodies started rejec… --- ## [Artificial liver](https://forum.livingwithpsc.org/t/artificial-liver/899)
**Author:** [@Meme](https://forum.livingwithpsc.org/u/Meme)\ **Replies:** 2\ **Last updated:** [November 8, 2014, 9:27pm UTC](https://forum.livingwithpsc.org/t/artificial-liver/899 "2014-11-08T21:27:47Z")
Hi everyone, Here is another site that talks about liver issues and possible future cures. Here is the link to the artificial liver page. http://www.sciencedaily.com/releases/2014/09/140922175747.htm?utm\_source=feedbur… --- ## [How to cope with partner who does not understand!](https://forum.livingwithpsc.org/t/how-to-cope-with-partner-who-does-not-understand/898)
**Author:** [@Cassie](https://forum.livingwithpsc.org/u/Cassie)\ **Replies:** 7\ **Last updated:** [September 24, 2014, 1:11am UTC](https://forum.livingwithpsc.org/t/how-to-cope-with-partner-who-does-not-understand/898 "2014-09-24T01:11:40Z")
I am finding relationships with girlfriends, difficult due to the energy required to catch-up for coffee...however, Im more concerned regarding my personal relationship with a disengaged male partner, who just ignores me… --- ## [Exercise](https://forum.livingwithpsc.org/t/exercise/896)
**Author:** [@Gers\_man](https://forum.livingwithpsc.org/u/Gers_man)\ **Replies:** 1\ **Last updated:** [August 29, 2014, 2:18am UTC](https://forum.livingwithpsc.org/t/exercise/896 "2014-08-29T02:18:23Z")
Hi there. I have always been a man for the gym. I used to do a lot of weight lifting then due to injury turned to lighter resistance and cardio. I started having problems last year while doing Insanity. I lost about a s… --- ## [Diagnosed with PSC](https://forum.livingwithpsc.org/t/diagnosed-with-psc/895)
**Author:** [@Foxy](https://forum.livingwithpsc.org/u/Foxy)\ **Replies:** 9\ **Last updated:** [August 19, 2014, 7:22pm UTC](https://forum.livingwithpsc.org/t/diagnosed-with-psc/895 "2014-08-19T19:22:28Z")
Diagnosed 12 years ago. In the lasr two months I've lost 15 pounds. My bilirubin is 11. Alk Phos is 728. Have nausea, fatigue, some internal bleeding. Very weak, I might add. --- ## [To add another issue](https://forum.livingwithpsc.org/t/to-add-another-issue/894)
**Author:** [@Lisa2](https://forum.livingwithpsc.org/u/Lisa2)\ **Replies:** 3\ **Last updated:** [August 17, 2014, 4:21pm UTC](https://forum.livingwithpsc.org/t/to-add-another-issue/894 "2014-08-17T16:21:16Z")
Hey everybody, Well...on top of riding on a roller coaster with PSC, my husband is now recovering from a 4-wheeler accident. This occurred on Monday-was talking on the phone with my MIL when my cell phone rings-my hus… --- ## [Just needing to tell the story](https://forum.livingwithpsc.org/t/just-needing-to-tell-the-story/892)
**Author:** [@Lisa2](https://forum.livingwithpsc.org/u/Lisa2)\ **Replies:** 8\ **Last updated:** [August 4, 2014, 2:33pm UTC](https://forum.livingwithpsc.org/t/just-needing-to-tell-the-story/892 "2014-08-04T14:33:29Z")
Hello everyone. I just became a member yesterday. As my profile says my husband is the one suffering with PSC. When he was first diagnosed we didn't really know what to expect. Our doctor said it could be years before he… --- ## [My First Post](https://forum.livingwithpsc.org/t/my-first-post/893)
**Author:** [@Auricaria](https://forum.livingwithpsc.org/u/Auricaria)\ **Replies:** 5\ **Last updated:** [August 4, 2014, 7:09am UTC](https://forum.livingwithpsc.org/t/my-first-post/893 "2014-08-04T07:09:01Z")
Hi I am a 56 year old male who since 1997, have been diagnosed with Crohns and a couple of years later, with PSC. After a couple of Crohns flare ups, I was treated successfully with prednisone and then put on Azathioprin… --- ## [Good news from a member](https://forum.livingwithpsc.org/t/good-news-from-a-member/891)
**Author:** [@Chaim\_B](https://forum.livingwithpsc.org/u/Chaim_B)\ **Replies:** 5\ **Last updated:** [July 26, 2014, 3:38am UTC](https://forum.livingwithpsc.org/t/good-news-from-a-member/891 "2014-07-26T03:38:17Z")
I was diagnosed 11 years ago. Last December I had for the first time in my life jaundice. My bilirubin was 11 (1 is normal). I went in for an ERCP and two weeks later another one. Since then my LFTs are coming down, and … --- ## [PSC Inquiry](https://forum.livingwithpsc.org/t/psc-inquiry/876)
**Author:** [@Len](https://forum.livingwithpsc.org/u/Len)\ **Replies:** 6\ **Last updated:** [July 18, 2014, 11:08pm UTC](https://forum.livingwithpsc.org/t/psc-inquiry/876 "2014-07-18T23:08:06Z")
It has been a while since my last entry but I am wondering if anyone has experienced the following. I have lost almost 30 pounds since the summer. I have been experiencing night sweats and fever with chills. My GI expres… --- ## [Latest Blood Work - Mid July 2014](https://forum.livingwithpsc.org/t/latest-blood-work-mid-july-2014/890)
**Author:** [@Semperfidelis1964](https://forum.livingwithpsc.org/u/Semperfidelis1964)\ **Replies:** 3\ **Last updated:** [July 15, 2014, 3:32pm UTC](https://forum.livingwithpsc.org/t/latest-blood-work-mid-july-2014/890 "2014-07-15T15:32:38Z")
Went in for my latest blood work on Saturday, just got the results back today. Most of my numbers remained consistent with March, though a few did increase but just a little bit. So I guess I'm still holding steady in … --- ## [Another Year, Another Colonoscopy - 2014 Results](https://forum.livingwithpsc.org/t/another-year-another-colonoscopy-2014-results/882)
**Author:** [@Semperfidelis1964](https://forum.livingwithpsc.org/u/Semperfidelis1964)\ **Replies:** 3\ **Last updated:** [June 24, 2014, 12:10pm UTC](https://forum.livingwithpsc.org/t/another-year-another-colonoscopy-2014-results/882 "2014-06-24T12:10:38Z")
Just like Spring and Summer come each year, so does my annual Colonoscopy. I really hate that lime drink in the big jug more than the procedure itself! So the good news is that my Colon (diagnosed with severe Ulcerati… --- ## [Anything to be concerned about or normal with psc?](https://forum.livingwithpsc.org/t/anything-to-be-concerned-about-or-normal-with-psc/887)
**Author:** [@meerkat](https://forum.livingwithpsc.org/u/meerkat)\ **Replies:** 5\ **Last updated:** [June 17, 2014, 8:24pm UTC](https://forum.livingwithpsc.org/t/anything-to-be-concerned-about-or-normal-with-psc/887 "2014-06-17T20:24:39Z")
Hi woke up at 5am with excrutiating pain in my right side,and have been in agony ever since ( about 5 hrs) if I move or take a deep breath it hurts even more also feeling very nauseous is this anything to worry about or … --- ## [Primary Sclerosing Cholangitis - A Summary](https://forum.livingwithpsc.org/t/primary-sclerosing-cholangitis-a-summary/889)
**Author:** [@Priya\_P](https://forum.livingwithpsc.org/u/Priya_P)\ **Replies:** 2\ **Last updated:** [June 6, 2014, 6:49pm UTC](https://forum.livingwithpsc.org/t/primary-sclerosing-cholangitis-a-summary/889 "2014-06-06T18:49:39Z")
Being new to this world, I've spent the last couple of weeks trying to get my head around the facts of the disease and in doing so I started to summarise what I found into a small document. I attach the info here for ref… --- ## [Blood results](https://forum.livingwithpsc.org/t/blood-results/888)
**Author:** [@noor](https://forum.livingwithpsc.org/u/noor)\ **Replies:** 11\ **Last updated:** [May 16, 2014, 6:36am UTC](https://forum.livingwithpsc.org/t/blood-results/888 "2014-05-16T06:36:24Z")
hi. my wife went to do a full liver blood count and the results were very surprising. the liver blood test results are almost normal. has anyone with psc experienced this. we are afraid to get too excited thinking that t… --- ## [Living with Small Bile Duct PSC](https://forum.livingwithpsc.org/t/living-with-small-bile-duct-psc/875)
**Author:** [@Seuss\_Phillips\_mom](https://forum.livingwithpsc.org/u/Seuss_Phillips_mom)\ **Replies:** 2\ **Last updated:** [May 13, 2014, 2:29pm UTC](https://forum.livingwithpsc.org/t/living-with-small-bile-duct-psc/875 "2014-05-13T14:29:32Z")
My son was diagnosed in 2011 with Ulcerative Colitis and Small Bile Duct PSC. His UC is still active and he has a large inflamatory polyp that showed up on colonoscopy this year. It showed no dysplasia and for the time b… [Next page](https://forum.livingwithpsc.org/c/general/blog/5.md?page=1)